Research helps autism center provide services at no cost

Research


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How the U-M team evaluates autism cases: www.ns.umich.edu/podcast/video.php?id=258

A 10-hour detailed autism assessment typically costs $2,400 but more than 90 percent of the patients at the U-M Autism and Communication Disorders Center (UMACC) receive it for free thanks to federal research and stimulus support.

UMACC Director Catherine Lord also has expanded her staff from 30 to 45 people over the past year thanks to the added government support, as well as private donations allowing her to hire new people to conduct research and evaluate a record 700 patients last year.

“We have six intervention studies going on, five assessment studies and three interview studies so fewer than 10 percent of our families actually paid for their care,” Lord says, showing research can have short-term as well as long-term benefits.

Patients receive a report with recommendations on the best course to follow in determining what communication issues their child has and exactly what the best approaches are for helping their child grow to their highest potential.

Lord, a nationally recognized autism researcher who pioneered techniques for early detection, is a leader in several national research studies including an 11-university consortium to gather and bank DNA samples from 3,000 autism patients across North America.

When she came to U-M in 2001, she began the center with a small staff of five. It’s continued to grow, adding staff from entry-level interviewers to master’s level speech graduates to highly trained PhDs.

Lord played a key role in learning how to properly diagnose 2-year-olds a decade ago and is making new gains diagnosing young children at the U-M center.

While medications have helped with related conditions such as depression and hyperactivity, the best way to deal with autism is to intervene as early as possible to treat the condition, she says. Children who developed even some very simple speech skills prior to the first time they were evaluated at age 2 were more independent and more successful in school and socially than children who had only slightly fewer skills, she says.

Autism, a disorder that is now found in one out of every 200 children, is a complex developmental disability that typically appears during the first three years of life. Autistic spectrum disorders impact the normal development of the brain processes related to social interaction and communication skills. Children and adults with autism typically have difficulties with verbal and non-verbal communication, social interaction and leisure or play activities.

For more information about participating in the research studies, call the center at 936-8600, e-mail umacc@umich.edu or go to UMACC’s Web site at www.umaccweb.com.